If you’ve been diagnosed with Crohn’s disease, you may feel overwhelmed and uncertain about how the disease will affect your personal and professional life. This article includes facts and statistics about Crohn’s disease to give you a better idea of what to expect.

Crohn’s Disease Statistics

Inflammatory bowel disease affects nearly 3 million Americans. Crohn’s disease, a form of IBD, affects about half a million Americans.

The following are some demographic and environmental statistics about Crohn’s disease:

Crohn’s affects men and women equally, with the same likelihood of developing the disease. Though it can be diagnosed at any age, Crohn’s disease is most commonly diagnosed between the ages of 20 and 30. Crohn’s disease is more common in people who smoke. Crohn’s disease is more common in white people. However, it can affect people of any background.

Crohn’s disease can be hereditary, meaning it has a genetic component. However, not everyone with the disease has a known family history. It can be impossible to predict who will get Crohn’s disease or any type of IBD.

Facts About Crohn’s Disease

Types of Crohn’s Disease

Crohn’s disease inflammation can occur anywhere along the GI tract between the mouth and anus. There can also be healthy portions of the digestive tract intermixed with inflamed areas.

There are five types of Crohn’s disease. The type is determined by where the inflammation occurs along the GI tract:

Ileocolitis: The most common type of Crohn’s, it occurs in the small intestine and the large intestine (colon). Ileitis: It affects only the ileum, which is the end of the small intestine. Gastroduodenal: It affects the stomach and the duodenum (the beginning of the small intestine). Jejunodeitis: It affects the jejunum, the upper part of the small intestine. Granulomatous: It affects the colon. This type is also known as Crohn’s colitis.

Physical Effects of Crohn’s Disease

Crohn’s disease can cause various digestive issues and complications, including:

Fistulas: Abnormal tunnels in the intestine caused by inflammation; often inflamed or infected Anal fissures: Tears in the anus that cause pain, bleeding, and itching Ulcers: Open sores in the mouth, intestines, or anus Abscesses: Infected pockets in the intestines; can be painful and become infected Malnutrition: Lack of absorption of nutrients throughout the intestines Intestinal obstructions: Due to a thickening of the intestinal wall

Having a diagnosis of any type of IBD, such as Crohn’s disease, increases the risk of colon cancer.

Emotional Effects of Crohn’s Disease

In addition to physical issues, Crohn’s can cause emotional distress due to the symptoms and effort required to manage the disease.

People with Crohn’s disease often feel overwhelmed by their disease. They can suffer from:

Increased stress due to the inhibiting and possibly embarrassing symptoms they experiencePoor self-esteem and body imageFrustration with the lack of control in their livesMental health disorders

Crohn’s patients have a higher likelihood of depression and other mental health conditions. This may be due to the burden of having a lifelong, incurable disease, or from the stress of managing a disease with such intense symptoms.

Fatigue and exhaustion are common in Crohn’s patients, which can exacerbate feelings of depression and anxiety.

Impact on Lifestyle

Crohn’s disease patients are advised to self-monitor their food intake and stay away from foods that cause pain and other disease symptoms.

Other guidance for Crohn’s patients can include the following:

Eat smaller, more frequent meals. Drink plenty of fluids. Avoid caffeine and alcohol. Take physician-recommended vitamin and mineral supplements. Reduce intake of dairy, carbohydrates, and foods with excess fat.

Crohn’s Disease vs. Ulcerative Colitis

Crohn’s disease is sometimes confused with ulcerative colitis (UC), another type of IBD.

Both Crohn’s and UC cause similar inflammatory symptoms. However, ulcerative colitis is limited to the colon, whereas Crohn’s disease can occur sporadically, anywhere from the mouth to the anus.

Realities of Living With Crohn’s

Crohn’s disease can be isolating and challenging to live with on a daily basis, particularly when it can appear “invisible” to outsiders. Many people with Crohn’s feel emotionally and physically drained from the symptoms and the unpredictability that comes with having a chronic disease.

Making plans can be difficult, because people with Crohn’s never know when they will experience symptoms. Many decisions need to be made on a day-by-day basis, such as what to eat or whether the person feels well enough to work or travel.

With time, people begin to accept their Crohn’s disease diagnosis and find ways to manage the emotional and physical toll that comes with it.

Misconceptions About Crohn’s

Misconception #1: A special diet will “cure” you.

Inflammatory bowel diseases, including Crohn’s, are chronic. This means people can experience active Crohn’s disease symptoms and then go into remission at any time, sometimes unpredictably, but there is no cure.

There are foods you can avoid to help manage symptoms and avoid a flare-up. However, there is no special diet that can “cure” Crohn’s.

Misconception #2: Crohn’s disease only causes diarrhea.

Crohn’s disease does cause diarrhea. However, the disease also causes inflammation in the digestive tract that can lead to abdominal pain, weight loss, fatigue, and malnutrition.

In addition, Crohn’s disease can cause potentially severe complications, including intestinal obstructions, abnormal tunnels, ulcers, and abscesses along the digestive tract.

Misconception #3: Crohn’s disease is caused by a poor diet.

There is no scientific evidence that a poor diet causes Crohn’s disease or that it can be prevented with a healthy diet. However, eating a healthy diet can help relieve or mitigate symptoms of Crohn’s.

A Word From Verywell

Chronic illnesses like Crohn’s disease can be challenging to live with. They not only impact the person diagnosed with the disease but their friends and family as well. Crohn’s can be even more frustrating when others can’t see that you are suffering. For this reason, many people with Crohn’s feel the need to isolate themselves further, which can lead to emotional distress, anxiety, and depression. Consider speaking with a mental health professional and connect with others who are successfully managing the disease.

Every Crohn’s disease patient is different. Some rarely experience flare-ups and live mostly in remission, while others have consistent problems that require medication and even surgery. Fortunately, there are treatments available and healthcare providers who specialize in treating IBD who can help, with new research being conducted every day.

ColonoscopyComputed tomography (CT) scanMagnetic resonance imaging (MRI)Capsule endoscopy

Ileocolitis: The most common type, which affects the end of the small intestine and large intestineIleitis: Affects only the ileum (the last part of the end of the small intestine)Gastroduodenal: Affects the stomach and the duodenum, which resides at the beginning of the small intestineJejunodeitis: Affects the jejunum in the upper part of the small intestineGranulomatous: Affects the colon